PWS-USA Florida Chapter and The Arc of Alachua County partner on Ultra-Successful PWS Spring Meeting
The PWS-USA Florida Chapter's Spring Meeting at The Arc on Saturday, April 20th was a huge success.
The event was blessed with great weather, caring volunteers, generous benefactors and, most importantly, families dedicated to advocating and supporting people with Prader-Willi Syndrome (PWS). The event was a huge success due to the plans, preparations and partnership between PWS-USA's Florida Chapter and The Arc.
The Arc thanks Desiree Giuliano and Michelle Torbert from PWS-USA Florida Chapter for their experience, support and helpfulness throughout the entire planning process. It was a pleasure working with them, and the wonderful parents, advocates and young people who I grew to know as strong advocates and good friends. A huge 'shout out' goes out to Dr. Miller and Dr. Tan for their riveting and cutting-edge presentation on PWS, PWS Treatment and Nutrition for People with PWS.
Many of the attendees were families and friends impacted by PWS throughout Florida and beyond. All of these 'new faces' got to see what a great PWS Program looks like, under the leadership of incredibly passionate and intelligent experts like Dr. Miller, Dr. Tan, Mark A. Swain and dedicated Arc employees and behavior analysts.
Most of all, I thank our Arc clients with PWS and those families who traveled from far away and who were unfamiliar with The Arc, who got to learn about our programs, services and group homes dedicated to supporting people with PWS. Everyone had an incredible time and were comforted by the knowledge that The Arc of Alachua County is here to help people with PWS when needed.